Retirement Travelers
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National Multiple Sclerosis Society Website:
https://www.nationalmssociety.org/
This video tells Bev's story about being diagnosed with Multiple Sclerosis, or MS, and how we travel with ms. Bev is a ms success story, and we hope the same for you if you are dealing with it too. We tell how we travel the world with MS and how we live life to the fullest. We hope this video will inspire people and know that there is hope, even with an MS diagnosis.
What is MS?
Multiple sclerosis (MS) is an autoimmune disease that affects the central nervous system (CNS), which includes the brain and spinal cord. It is a complex condition characterized by a wide range of symptoms and can vary greatly in severity from person to person. Here is an overview of multiple sclerosis:
1. Pathophysiology: The exact cause of MS is not fully understood, but it is believed to involve a combination of genetic and environmental factors. In MS, the immune system mistakenly attacks the protective covering of nerve fibers called myelin. This attack, known as demyelination, disrupts the normal flow of electrical impulses along the nerves, leading to a variety of neurological symptoms.
2. Symptoms: MS symptoms can vary widely and may include:
Fatigue
Muscle weakness or spasms
Balance and coordination problems
Numbness or tingling in limbs
Vision problems (blurred vision, double vision, or loss of vision)
Difficulty with speech or swallowing
Problems with concentration and memory
3. Types of MS:
Relapsing-Remitting MS (RRMS): This is the most common form, characterized by periods of symptom exacerbation (relapses) followed by partial or complete recovery (remissions).
Primary Progressive MS (PPMS): In this form, symptoms gradually worsen over time without distinct relapses or remissions.
Secondary Progressive MS (SPMS): Many people with RRMS eventually transition into SPMS, where there is a steady worsening of symptoms with or without occasional relapses.
Progressive-Relapsing MS (PRMS): This is a less common subtype characterized by steady progression of the disease with occasional relapses.
4. Diagnosis: There is no single test for MS, and diagnosis can be challenging. It typically involves a combination of clinical evaluation, medical history, magnetic resonance imaging (MRI) scans, lumbar puncture (spinal tap), and blood tests to rule out other conditions with similar symptoms.
5. Treatment: While there is no cure for MS, various treatments are available to manage symptoms, slow disease progression, and improve quality of life. These treatments include:
Disease-modifying therapies (DMTs) to reduce the frequency and severity of relapses.
Medications for symptom management, such as muscle relaxants, pain relievers, and immunosuppressants.
Physical therapy, occupational therapy, and speech therapy to address specific symptoms and improve function.
Lifestyle modifications, including exercise, a healthy diet, and stress management, to support overall well-being.
6. Prognosis: The course of MS is highly variable. Some individuals may experience mild symptoms and lead relatively normal lives, while others may become severely disabled.
7. Research and Future Outlook: Ongoing research in MS is focused on understanding its underlying causes, developing more effective treatments, and improving the quality of life for individuals with the condition. Promising advances in immunotherapy and neuroprotection offer hope for better management and potentially even a cure in the future.
▶️ We started our channel to inspire and share our world travel lifestyle, adventures, and optimistic outlook on life with others. After completing a two-year journey in our Airstream to see all 50 states and 51 National Parks, we left to travel abroad. We have downsized our possessions and sold our home so that we can wander about with only the things in our backpacks.
Video # 135
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@RetirementTravelers
We hope this video helps raise awareness about MS and other autoimmune diseases! John and Bev
National Multiple Sclerosis Society Website:
https://www.nationalmssociety.org/
@nncadi1
Again, it just boggles my mind how people can be so judgmental?? You all are the most positive and inspirational people “I know”. Keep on trucking!
@christineshields1714
Thank you for sharing your inspirational story. As someone who at age 62 was diagnosed with an autoimmune disease that has seriously impacted my lungs, I feel the same sense of urgency to travel, see the world, and live life as adventurously as possible while my body will allow me to.
@raelenesharp-rc2zw
Thankyou for sharing. I’ve just turned 65 (young) on the ferry from Wellington to Picton in March. I had 14 days solo in NZ from Perth Western Australia. I developed MS at age 28. Fortunately I’m still mobile and self caring. I am, however, plagued by overwhelming fatigue on a daily basis. I live in a very hot climate here. NZ was sensational and cool in autumn, and travelling on my own, I could do things at my own pace. My husband doesn’t travel due to his own heath restrictions. I plan to return next year, but only for about 9 days as I tend to push myself too much on holidays and end up sick with respiratory complaints. I have lowered immunity and pick up bugs easily. I also took the Coastal explorer train which was just beautiful. I will possibly repeat that journey next time, and also try to fit in the other train journeys as well. There is so much to see there, and I hope to return on several occasions in the next few years. I have two toy poodles and miss them way too much if I stay away too long. This year I also will take the Indian Pacific train to Sydney and have five days there…then a week in Singapore in October. My recent journey to NZ really brought home to me just how exhausting flying is to me. I doubt I’ll ever get back to Europe again unless I come into $$$ haha! Enjoy you travels! Warmest regards 🇦🇺🦘
@mariamuoio8495
John and Bev tears came to my eyes as I Bev was also diagnosed with MS in my 30's in 1996. I also have relapsing/remitting and my first symptom was blurred vision and then got vertigo with unsteady gait. I Bev have travelled the world and still to this day will do as we don't know what's around the corner. I am now 64 and keep fit and healthy and so far so good with only 1 true attack back in 2008 so Bev keep on travelling and I wish you and John the best in your travels.
@cherylcarlson3315
Ironically, I used to donate to every MS drive as younger coworker developed it right after giving birth.Tonight she is on a dream vacation and I am home bound unable to travel thanks to what is probablyMG but has taken 5 yrs to get the medicine to control the profound weakness that gave me blurred vision, difficulty breathing, stumbling and falling so often dressed to fall. Still can't walk around the block , hard to stomach when I used to bike 2o mi and lived full out til at 58 it came to crashing halt. Auto immune diseases are a real challenge.
@MagentaOtterTravels
Wow, Bev, I'm shocked to hear that you were diagnosed 25 years ago! I applaud you for planning and living a full and vibrant life with this unpredictable disease! 👏You are an inspiration! ❤
I can't believe the tremendous amount of walking you do in your trips! 😮 You are doing GREAT!
Wishing you many many years of exciting and rewarding travel! Big hugs 🤗 Dara
@lmyers6377
Hugs to you both. Because of my husbands and my health issues we have started traveling more while we can because we too realize good health isn’t always a given. We are grateful we can travel at this time. In fact we are in Frankfurt now waiting a flight, just spent a week in Split Croatia. Thanks so much for sharing and inspiring others. 😌
@sbayles5593
My 48 year old niece had a stroke 2 years ago related to Covid. The diagnosis was a blood clot in the brain related to Covid. She has recovered to a large extent but will have weakness on her left side forever. You never know what life is going to throw you so your message to make the best of life while you can is one taken to heart. Thanks for sharing your story and stay strong as you always are.
@debiannh
God bless you both! My stepson died from MS about 10 years ago & now my grandson has been diagnosed with it. It feels me with fear. I know I need a lot more information about my grandson’s diagnosis & my stepson didn’t really take very good care of himself. My stepson was only 17 when he was diagnosed and my grandson is 17 also. I pray that God is with you & us every step of the way.
@carolpool5583
I have been watching your videos for awhile now. I have always really enjoyed the detailed information and good pictures you share. Please don't listen to the armchair nuts who want to tell you what to do and how you should travel. I can tell, as a nurse, that you both have done your research and are well informed about your disorder and future. I am so happy you are getting to live your dream. Keep traveling and sharing as it makes a difference for those of us wanting to follow in your footsteps. In the wise words of Rick Steves, "Fear is for those who don't get out much". Thank you for sharing!
@freetowandernow
Such a hopeful video :) I am a breast cancer survivor who at one time was the main caregiver for my Mum who had progressive MS. My husband and I travel full time now and many of our friends comment that we are so young to be retired (we're 57) and we have many earning years left. We've spent the last two years travelling fast, slow, and in between. Sometimes we stay in fancy hotels, sometimes in our camper van! Here in Canada it is Thanksgiving weekend and I'm thankful you are healthy and I get to watch you while I travel the world.
@catherine8332
Amazing! No reply required. 😊
I’m just amazed you’re both the picture of health.
You never know with life so you might as well go for it no matter what!!
@hopeemond2840
Never mind what people say about how you should travel (how can they even think it’s their business). It’s your life, and your decision on how you will travel the world. You are very brave, and very adventurous to travel like you do. I also am amazed at how active you both are. Loving your videos!
@gazzafloss
Thanks for that "heads up" on your reason for the way you're doing your travel, to be truthful I've often wondered. But I guess none of us know how long we'll be around or healthy enough to continue "life as usual" so the message is, "seize the day", the next one is not assured to any of us.
@beckyo489
I pray that you have many more years of traveling.
@GlobetrotterGranny
Why in the world would anyone tell you that you’re “doing things wrong”? It’s YOUR adventure, not theirs. It’s YOUR choices, not theirs. It’s YOUR life, not theirs. You do YOU! No matter what others may say, you follow YOUR dreams. All that said, wow! I’m so inspired by your MS story. I don’t have MS, but I do have a 25-year struggle with my own diagnosis of Fibromyalgia and Chronic Fatigue as a result of decades of extreme stress, as well as lung issues that cause me to frequently cough, sometimes fairly aggressively. My life now is about as stress free as is possible. I REFUSE to allow my diagnosis to dictate who I am and what I do in my life, although it does limit some of my physical abilities. I too travel as much as I possibly can. While I may never get to do one of my bucket list trips to hike to Mt. Everest Base Camp, I will go to and experience this great big world while I physically can. We will travel the way that best suits OUR purpose. You are a TRUE INSPIRATION! That your husband is so supportive of this dream and helps make your (and I suspect his) dreams come true, is a real testament to profound love that you two have for each other. Thank you for sharing you story. Keep on keeping on each and every day that you possibly can. When you need to take a breather, take it, then get back up and get moving along your journey.
@juliannelaird43
Gosh, you guys! I think you are the BEST! My mother in law lived with MS for over 60 years. My sister in law (other side of the family) has been living with MS since her first baby was born. You are an inspiration!!!!!
@CruisingWithDee
I completely relate to this. I have severe Rheumatoid Arthritis, and that is one of the reasons that I travel so much (and so fast) as well. My flare ups are not predictable, and I can either be fully healthy, or non-mobile at the drop of a hat. Also, the doctors say that my disease cuts down my life span. So, my husband and I are traveling as much as we can right now. I’m 62. Thank you for making this video.
@FloridaandBeyond
I was diagnosed 14 years ago. I know what you mean about not knowing if you have 3 days or 30 years. I have been doing okay for the last 14 years. My biggest problem is being tired. We decided to start our channel 3 years ago to get out and travel more. I am on Glatiramer acetate. Question: How do you get your medicine while traveling? I have the same feeling we can't go fast enough to see things like the clock is ticking louder and louder. I'm really hoping for another good 20 to 30 years just so I can see everything I want to see. I have a bucket list. Good luck on your MS journey and we can only pray they find a cure soon, so we can beat this horrible disease!