The Ehlers-Danlos Society
@TheEhlersDanlosSociety - 724 本の動画
チャンネル登録者数 3.72万人
The Ehlers-Danlos Society is a global organization dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hyperm...
最近の動画
2:02
Thank you Australia! Relive the 2025 Global Learning Conference
2:58
Making a difference for EDS and HSD — Thank you 2024!
32:10
Equitable Care: Empowering Marginalized Voices in EDS and HSD
2:49
The Ehlers-Danlos Society 2024 Global Learning Conference
4:08
Celebrating 5 Years of EDS ECHO
55:17
'Conversations With' Series: Accessing care as a 2SLGBTQIA+ individual
19:13
2021 Visceral Arteries in vEDS - Dr. Amani Politano
18:35
2021 The Aorta and Iliac Arteries Pathology in vEDS - Dr. Sherene Shalhub
19:01
2021 Family Planning, Anticipating & Managing Pregnancy Complications - Dr. Melissa Russo
15:34
2021 Carotid, Vertebral, and Subclavian Arteries in vEDS - Dr. John Westley Ohman
16:37
2021 What My Toolbox Looks Like, And How You Could Build Yours - Katie Wright
20:02
2021 Outpatient Medical Management in vEDS - Dr. Fleur Van Dijk & Dr. Glenda Sobey
12:42
2021 Gene Modifiers Loci Associated to Colonic Perforation - Dr. Xavier Jeunemaitre
14:38
2021 Migraine in vascular EDS - Dr. Manjit Matharu
8:29
2021 Ambulatory BP Study - Dr. Siddarth Prakash
10:46
2021 Genetics and Molecular Biology in vEDS - Dr. Lauren Puryear
9:40
2021 Natural History Study Update - Dr. Stephanie Wallace
16:21
2021 Psychosocial Issues in Patients Living With vEDS - Leanne Barrett
9:29
2021 Intestinal Emergencies in vEDS - Dr. Jessica A. Zagory
21:26
2021 Interpreting the Genetic Testing Report - Dr. Duncan Baker & Dr. Neeti Ghali
13:05
2021 School Adaptations for vEDS - Jared Griffin
31:10
2021 Managing Lumbar Instability - Dr.Russek
33:40
2021 Peripheral Neuropathy - Dr. David Saperstein
23:46
2021 Persistent Headache and Migraine - Dr. Salwa Kamourieh
33:26
2021 Orthostatic Headache - Dr. Manjit Matharu
19:55
2022 Autoimmune Rheumatic Disease and Ehlers-Danlos Syndromes - Dr. Clair Francomano
15:31
2022 Coping with the Challenges and Fears of MCAS - Courtney Rabb
25:11
2022 Immune Dysfunction in HSD and EDS: Beyond Mast Cell Activation Disease - Dr. Anne Maitland
46:27
2022 Our Immune System - Dr. Anne Maitland
30:53
2022 Disorders of Mast Cells and Mast Cell Activation - Dr. Mariana Castells
31:19
2022 Inflammation, Pain, and Urogynaecological Disorders - Prof. Vik Khullar
9:56
2022 How to Talk to Your Physician and Make the Most Out of Your Doctor Appointments! - Valerie Slee
1:05:33
2023 The Princess and the Pea - Sleep, Sleep Apnea and Hypermobility Syndromes - Kateri Champagne
35:53
2023 Fatigue - The Complex Interplay Between Physical and Mental Health - Dr. James Kustow
25:04
2023 Fatigue in Headache Disorders - Prof. Manjit Matharu
10:10
2023 Pacing, Exercise and Managing Daily Activities: Tips from a Community Voice Perspective
32:38
2023 Dysautonomia, Physical Health and Fatigue - Dr. Peter C. Rowe
25:53
2023 Chronic Pain and Fatigue - Dr. Helen Cohen
12:29
2023 Introduction to Fatigue in EDS and HSD - Dr. Alan Hakim
36:00
2023 Fatigue in EDS: An Overview of Causes, Assessment, and General Principles of Management
32:01
2023 Nutrition and Fatigue - Lorna Ryan
31:57
2023 Pacing, Exercise, and Managing Daily Activities - Emily Rich
27:40
2023 Mast Cell Disorders, Inflammation, and Fatigue - Dr. Anne Maitland
8:37
2023 Community Voice: Mikaila Delgado
4:56
2023 'I'm Not Just Tired' - Tara Rule
10:43
2023 Living with hEDS and HSD: POTS - Francie Fitzgerald
12:44
2023 Living with hEDS and HSD: Pain - Maggie Buckley
23:44
2023 Treatment: Gastrointestinal (GI) Issues - Dr. Isabelle Brock
11:26
2023 Treatment: Adaptive Aids & Devices to Help with Symptoms - Mars Lombardi
9:29
2023 MCAS Treatment — Addressing Unmet Needs - Scarlett Eagle
8:57
2023 Diagnostic Odyssey: MCAS - Danielle Vaccaro
11:28
2023 Treatment: Pain, An Integrated Approach - Dr. Cortney Gensemer, PhD
14:59
2023 An introduction to the Diagnostic Odyssey - Dr. Colin Halverson
17:52
2023 Introduction on Living with hEDS and HSD - Dr. Alan Hakim
13:42
2023 My Diagnostic Journey - from Both Sides of the Stethoscope - Dr. Brianna Cardenas
6:26
2023 Welcome to the Patient-Focused Drug Development Meeting - Dr. Cynthia Rothblum-Oviatt
8:16
2023 Introduction on hEDS and HSD - Dr. Clair Francomano
6:35
2023 Living with hEDS and HSD – MCAS - Courtney Rabb
9:06
2023 Diagnostic Odyssey: Hypermobile Ehlers-Danlos Syndrome (hEDS) - Emily Rubenstein
14:52
2023 Living with hypermobile Ehlers-Danlos syndrome (hEDS) and GI Issues - Harry Radcliffe
15:14
2023 Unmet Needs and Challenges for Patients/Families Living with Genetically-Defined EDS
9:40
2023 EDS & Relationship Functioning - Sabine Hellemans
16:45
2023 Organization of the Rare Disease Program for Musculoskeletal Diseases in Hungary
18:04
2023 Patient Advocacy Toolkit for People with vEDS - Dr. Juliette Harris
21:42
2023 vEDS Collaborative Natural History Study & Splenic Arteriopathy in vEDS - Sherene Shalhub
8:25
2023 iPSC in musculocontractural EDS - Dr. Tomoki Kosho
13:06
2023 A Clinical Diagnosis of Rare EDS Without Genetic Cause - What Next? - Dr. Fleur van Dijk
11:52
2023 Preimplantation Genetic Testing in Genetically Defined Types of EDS - Dr. Chloe Angwin
18:44
2023 Variants of Unknown Significance - Dr. Marco Castori
11:04
2023 Understanding the psychosocial issues faced by children with classical EDS - Ruth Nicholson
10:05
2023 Experience of Adults with cEDS - Margaret Warren-Perry
21:14
2023 Psychosocial Aspects of Living with a Genetically Defined Type of EDS
10:17
2023 Non-accidental injury investigations in patients w/ subsequently confirmed rare types of EDS-
7:42
2023 EDS Society Centers and Networks of Excellence - Dr. Clair Francomano
9:41
2023 Handle with Care! Physical Therapy For Genetically Defined Types of EDS - Nina Riise
17:45
2023 Cardiovascular Manifestations and Follow-up in Adults - Michael Frank
16:38
2023 Handle with Care! Physical Therapy For Genetically Defined Types of EDS - Lies Rombaut
21:00
2023 Considering physical therapy modalities with the highly sensitive patient - Dr. Patricia Stott
23:29
2023 Daily Accessible Movement - Finding Movement For The Body You Have Today - Dr. Aiko Callahan
20:19
2023 Posture Alignment Using the Alexander Technique for Hypermobility - Ann Rodiger
25:20
2023 Pain Management in EDS & HSD - Dr. Shilpa Gajarawala
26:05
2023 Help Me Trust You After My Misdiagnosis - Sarah Clark
26:06
2023 Open communication with partners and providers on the subject of sex - Martha Wiggin
23:23
2023 - Setbacks and Superpowers of people with chronic complex overlapping disorders
25:56
2023 - Menstrual Health and Contraception in Adolescents and Young Adults living with EDS/HSD
39:47
2023 - EDS, HSD & the GI tract - Prof. Qasim Aziz
22:52
2023 Migraines Are Not Bad Headaches - Helen Spriggs
29:20
2023 Integrating Holistic Nutrition Strategies to Manage Upper/Lower GI Symptom Flares - Lorna Ryan
24:08
2023 Managing your Diet in Social Settings - Laurie Bilyeu
23:12
2023 Pitfalls of a Restrictive Diet - Lorna Ryan
18:33
2023 Deconditioning - How To Appropriately Recondition The Hypermobile Body - Dr. Derik Anderson
22:50
2023 How to make sense of a variant of unknown significance - Prof. Fransiska Malfait
19:34
2023 It’s Not In My Head, But Can My Head Help - Dr. Lisa Belvy
24:49
2023 Weighing in on the difference between Eating Disorders and Disordered Eating - Becky Berry, RN
20:40
2023 Maintaining Stability & Managing Joint Pain - Filipa Rodrigues
26:27
2023 Finding comfort in school and the workplace with EDS & HSD - Jacqui Main
20:35
2023 Tips for Prenatal/Postpartum Musculoskeletal Pain - A Podiatrists Perspective - Sophie Roberts
21:15
2023 Managing post-partum prolapse - Dr. Anjali Agarwal
24:07
2023 Sexual Health Concerns and Solutions for Males (AMAB) with EDS and HSD - Dr. Cynthia Neville
30:34
2023 GI Motility and EDS - Dr. Mark Pimentel
Conversations With....
51:34
Conversations With Professionals: Vascular Ehlers-Danlos Syndrome (vEDS) - 2022
5840 回視聴 - 3 年前
1:09:49
Conversations With Our Community: Autonomic Symptoms, Ehlers-Danlos Syndromes (EDS), and HSD
1.2万 回視聴 - 3 年前
58:27
Conversations With Our Community: Gastrointestinal Issues (GI) in Ehlers-Danlos Syndrome (EDS)
1万 回視聴 - 3 年前
